AutomedicationFrancoV1, Main, Exploration, bibRecord, 000455

Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.

Identifieur interne : 000455 ( Main/Exploration ); précédent : 000454; suivant : 000456

Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.

Auteurs : Stéphanie Clavé [France] ; Michel Tsimaratos [France] ; Mohamed Boucekine [France] ; Bruno Ranchin [France] ; Rémi Salomon [France] ; Olivier Dunand [France] ; Arnaud Garnier [France] ; Annie Lahoche [France] ; Marc Fila [France] ; Gwenaelle Roussey [France] ; Francoise Broux [France] ; Jérome Harambat [France] ; Sylvie Cloarec [France] ; Soraya Menouer [France] ; Georges Deschenes [France] ; Isabelle Vrillon [France] ; Pascal Auquier [France] ; Julie Berbis [France]

Source :

BMC nephrology [ 1471-2369 ] ; 2019.

RBID : pubmed:31088395

Descripteurs français

KwdFr :
- Activités de loisirs (psychologie), Adaptation psychologique (physiologie), Adolescent (MeSH), Adulte (MeSH), Adulte d'âge moyen (MeSH), Autorapport (MeSH), Dialyse rénale (psychologie), Dialyse rénale (tendances), Enfant (MeSH), Femelle (MeSH), France (épidémiologie), Humains (MeSH), Insuffisance rénale chronique (psychologie), Insuffisance rénale chronique (thérapie), Insuffisance rénale chronique (épidémiologie), Mâle (MeSH), Parents (psychologie), Qualité de vie (psychologie), Études prospectives (MeSH).
MESH :
- physiologie : Adaptation psychologique.
- psychologie : Activités de loisirs, Dialyse rénale, Insuffisance rénale chronique, Parents, Qualité de vie.
- tendances : Dialyse rénale.
- thérapie : Insuffisance rénale chronique.
- épidémiologie : France, Insuffisance rénale chronique.
- Adolescent, Adulte, Adulte d'âge moyen, Autorapport, Enfant, Femelle, Humains, Mâle, Études prospectives.
Wicri :
- geographic : France.

English descriptors

KwdEn :
- Adaptation, Psychological (physiology), Adolescent (MeSH), Adult (MeSH), Child (MeSH), Female (MeSH), France (epidemiology), Humans (MeSH), Leisure Activities (psychology), Male (MeSH), Middle Aged (MeSH), Parents (psychology), Prospective Studies (MeSH), Quality of Life (psychology), Renal Dialysis (psychology), Renal Dialysis (trends), Renal Insufficiency, Chronic (epidemiology), Renal Insufficiency, Chronic (psychology), Renal Insufficiency, Chronic (therapy), Self Report (MeSH).
MESH :
- geographic , epidemiology : France.
- epidemiology : Renal Insufficiency, Chronic.
- physiology : Adaptation, Psychological.
- psychology : Leisure Activities, Parents, Quality of Life, Renal Dialysis, Renal Insufficiency, Chronic.
- therapy : Renal Insufficiency, Chronic.
- trends : Renal Dialysis.
- Adolescent, Adult, Child, Female, Humans, Male, Middle Aged, Prospective Studies, Self Report.

Abstract

BACKGROUND

To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life.

METHODS

All adolescents initiating haemodialysis between September 2013 and July 2015 in French paediatric haemodialysis centres were included. Quality of life data were collected using the "Vécu et Santé Perçue de l'Adolescent et l'Enfant" questionnaire, and coping data were collected using the Kidcope questionnaire. Adolescent's quality of life was compared with age- and sex-matched French control.

RESULTS

Thirty-two adolescents were included. Their mean age was 13.9 ± 2.0 years. The quality of life score was lowest in leisure activities and highest in relationships with medical staff. Compared with the French control, index, energy-vitality, relationships with friends, leisure activities and physical well-being scores were significantly lower in haemodialysis population. In multivariate analyses, active coping was positively associated with quality of life and especially with energy-vitality, relationships with parents and teachers, and school performance. In contrast, avoidant and negative coping were negatively associated with energy-vitality, psychological well-being and body image for avoidant coping, and body image and relationships with medical staff for negative coping.

CONCLUSIONS

The quality of life of haemodialysis adolescents, and mainly the dimensions of leisure activities, physical well-being, relationships with friends and energy-vitality, were significantly altered compared to that of the French population. The impact of coping strategies on quality of life seems to be important. Given the importance of quality of life and coping strategies in adolescents with chronic disease, health care professionals should integrate these aspects into care management.

DOI: 10.1186/s12882-019-1365-3
PubMed: 31088395
PubMed Central: PMC6515621

Affiliations:

Links toward previous steps (curation, corpus...)

to stream Main, to step Corpus: 000486
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Le document en format XML

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<author><name sortKey="Salomon, Remi" sort="Salomon, Remi" uniqKey="Salomon R" first="Rémi" last="Salomon">Rémi Salomon</name>
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<author><name sortKey="Dunand, Olivier" sort="Dunand, Olivier" uniqKey="Dunand O" first="Olivier" last="Dunand">Olivier Dunand</name>
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<author><name sortKey="Garnier, Arnaud" sort="Garnier, Arnaud" uniqKey="Garnier A" first="Arnaud" last="Garnier">Arnaud Garnier</name>
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<country xml:lang="fr">France</country>
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<author><name sortKey="Lahoche, Annie" sort="Lahoche, Annie" uniqKey="Lahoche A" first="Annie" last="Lahoche">Annie Lahoche</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Jeanne de Flandre Hospital, University Hospital of Lille, Lille</wicri:regionArea>
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<author><name sortKey="Fila, Marc" sort="Fila, Marc" uniqKey="Fila M" first="Marc" last="Fila">Marc Fila</name>
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<author><name sortKey="Roussey, Gwenaelle" sort="Roussey, Gwenaelle" uniqKey="Roussey G" first="Gwenaelle" last="Roussey">Gwenaelle Roussey</name>
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<author><name sortKey="Broux, Francoise" sort="Broux, Francoise" uniqKey="Broux F" first="Francoise" last="Broux">Francoise Broux</name>
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<author><name sortKey="Harambat, Jerome" sort="Harambat, Jerome" uniqKey="Harambat J" first="Jérome" last="Harambat">Jérome Harambat</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics, Hôpital Pellegrin-Enfants, University Hospital of Bordeaux, Bordeaux</wicri:regionArea>
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<author><name sortKey="Cloarec, Sylvie" sort="Cloarec, Sylvie" uniqKey="Cloarec S" first="Sylvie" last="Cloarec">Sylvie Cloarec</name>
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<country xml:lang="fr">France</country>
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<author><name sortKey="Deschenes, Georges" sort="Deschenes, Georges" uniqKey="Deschenes G" first="Georges" last="Deschenes">Georges Deschenes</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Assistance publique des Hôpitaux de Paris, University Hospital Robert Debré, Paris</wicri:regionArea>
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<author><name sortKey="Vrillon, Isabelle" sort="Vrillon, Isabelle" uniqKey="Vrillon I" first="Isabelle" last="Vrillon">Isabelle Vrillon</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Hôpital d'Enfants Brabois, Nancy, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Hôpital d'Enfants Brabois, Nancy</wicri:regionArea>
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<author><name sortKey="Auquier, Pascal" sort="Auquier, Pascal" uniqKey="Auquier P" first="Pascal" last="Auquier">Pascal Auquier</name>
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<country xml:lang="fr">France</country>
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<author><name sortKey="Berbis, Julie" sort="Berbis, Julie" uniqKey="Berbis J" first="Julie" last="Berbis">Julie Berbis</name>
<affiliation wicri:level="3"><nlm:affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
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<sourceDesc><biblStruct><analytic><title xml:lang="en">Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.</title>
<author><name sortKey="Clave, Stephanie" sort="Clave, Stephanie" uniqKey="Clave S" first="Stéphanie" last="Clavé">Stéphanie Clavé</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Multidisciplinary Pediatrics, Hôpital de la Timone Enfant, Assistance Publique des Hôpitaux de Marseille, Marseille, France. stephanie.clave@ap-hm.fr.</nlm:affiliation>
<country xml:lang="fr">France</country>
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<country xml:lang="fr">France</country>
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<author><name sortKey="Tsimaratos, Michel" sort="Tsimaratos, Michel" uniqKey="Tsimaratos M" first="Michel" last="Tsimaratos">Michel Tsimaratos</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Multidisciplinary Pediatrics, Hôpital de la Timone Enfant, Assistance Publique des Hôpitaux de Marseille, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
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<author><name sortKey="Boucekine, Mohamed" sort="Boucekine, Mohamed" uniqKey="Boucekine M" first="Mohamed" last="Boucekine">Mohamed Boucekine</name>
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<wicri:regionArea>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille</wicri:regionArea>
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<author><name sortKey="Ranchin, Bruno" sort="Ranchin, Bruno" uniqKey="Ranchin B" first="Bruno" last="Ranchin">Bruno Ranchin</name>
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<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Hôpital Femme Mere Enfant, Hospices Civils de Lyon, Lyon</wicri:regionArea>
<placeName><region type="region">Auvergne-Rhône-Alpes</region>
<region type="old region">Rhône-Alpes</region>
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<author><name sortKey="Salomon, Remi" sort="Salomon, Remi" uniqKey="Salomon R" first="Rémi" last="Salomon">Rémi Salomon</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Assistance Publique des Hôpitaux de Paris, University Hospital Necker-Enfants Malades, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Assistance Publique des Hôpitaux de Paris, University Hospital Necker-Enfants Malades, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Dunand, Olivier" sort="Dunand, Olivier" uniqKey="Dunand O" first="Olivier" last="Dunand">Olivier Dunand</name>
<affiliation wicri:level="1"><nlm:affiliation>Department of Pediatrics, Hôpital Félix Guyon, University Hospital La Réunion, Saint-Denis, La Réunion, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics, Hôpital Félix Guyon, University Hospital La Réunion, Saint-Denis, La Réunion</wicri:regionArea>
<wicri:noRegion>La Réunion</wicri:noRegion>
<wicri:noRegion>La Réunion</wicri:noRegion>
</affiliation>
</author>
<author><name sortKey="Garnier, Arnaud" sort="Garnier, Arnaud" uniqKey="Garnier A" first="Arnaud" last="Garnier">Arnaud Garnier</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Children Hospital Toulouse, Toulouse, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Children Hospital Toulouse, Toulouse</wicri:regionArea>
<placeName><region type="region">Occitanie (région administrative)</region>
<region type="old region">Midi-Pyrénées</region>
<settlement type="city">Toulouse</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Lahoche, Annie" sort="Lahoche, Annie" uniqKey="Lahoche A" first="Annie" last="Lahoche">Annie Lahoche</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Jeanne de Flandre Hospital, University Hospital of Lille, Lille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Jeanne de Flandre Hospital, University Hospital of Lille, Lille</wicri:regionArea>
<placeName><region type="region">Hauts-de-France</region>
<region type="old region">Nord-Pas-de-Calais</region>
<settlement type="city">Lille</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Fila, Marc" sort="Fila, Marc" uniqKey="Fila M" first="Marc" last="Fila">Marc Fila</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, hôpital Arnaud-de-Villeneuve, University Hospital of Montpellier, Montpellier, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, hôpital Arnaud-de-Villeneuve, University Hospital of Montpellier, Montpellier</wicri:regionArea>
<placeName><region type="region">Occitanie (région administrative)</region>
<region type="old region">Languedoc-Roussillon</region>
<settlement type="city">Montpellier</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Roussey, Gwenaelle" sort="Roussey, Gwenaelle" uniqKey="Roussey G" first="Gwenaelle" last="Roussey">Gwenaelle Roussey</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics, University Hospital of Nantes, Nantes, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics, University Hospital of Nantes, Nantes</wicri:regionArea>
<placeName><region type="region">Pays de la Loire</region>
<region type="old region">Pays de la Loire</region>
<settlement type="city">Nantes</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Broux, Francoise" sort="Broux, Francoise" uniqKey="Broux F" first="Francoise" last="Broux">Francoise Broux</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics, Pediatric Nephrology and Hemodialysis Unit, University Hospital Charles Nicolle, Rouen, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics, Pediatric Nephrology and Hemodialysis Unit, University Hospital Charles Nicolle, Rouen</wicri:regionArea>
<placeName><region type="region">Région Normandie</region>
<region type="old region">Haute-Normandie</region>
<settlement type="city">Rouen</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Harambat, Jerome" sort="Harambat, Jerome" uniqKey="Harambat J" first="Jérome" last="Harambat">Jérome Harambat</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics, Hôpital Pellegrin-Enfants, University Hospital of Bordeaux, Bordeaux, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics, Hôpital Pellegrin-Enfants, University Hospital of Bordeaux, Bordeaux</wicri:regionArea>
<placeName><region type="region">Nouvelle-Aquitaine</region>
<region type="old region">Aquitaine</region>
<settlement type="city">Bordeaux</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Cloarec, Sylvie" sort="Cloarec, Sylvie" uniqKey="Cloarec S" first="Sylvie" last="Cloarec">Sylvie Cloarec</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology and Hemodialysis, Clocheville Hospital, University Hospital of Tours, Tours, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology and Hemodialysis, Clocheville Hospital, University Hospital of Tours, Tours</wicri:regionArea>
<placeName><region type="region">Centre-Val de Loire</region>
<region type="old region">Région Centre</region>
<settlement type="city">Tours</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Menouer, Soraya" sort="Menouer, Soraya" uniqKey="Menouer S" first="Soraya" last="Menouer">Soraya Menouer</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatrics 1, University Hospital of Strasbourg, Hôpital de Hautepierre, Strasbourg, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatrics 1, University Hospital of Strasbourg, Hôpital de Hautepierre, Strasbourg</wicri:regionArea>
<placeName><region type="region">Grand Est</region>
<region type="old region">Alsace (région administrative)</region>
<settlement type="city">Strasbourg</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Deschenes, Georges" sort="Deschenes, Georges" uniqKey="Deschenes G" first="Georges" last="Deschenes">Georges Deschenes</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Assistance publique des Hôpitaux de Paris, University Hospital Robert Debré, Paris, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Assistance publique des Hôpitaux de Paris, University Hospital Robert Debré, Paris</wicri:regionArea>
<placeName><region type="region">Île-de-France</region>
<region type="old region">Île-de-France</region>
<settlement type="city">Paris</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Vrillon, Isabelle" sort="Vrillon, Isabelle" uniqKey="Vrillon I" first="Isabelle" last="Vrillon">Isabelle Vrillon</name>
<affiliation wicri:level="3"><nlm:affiliation>Department of Pediatric Nephrology, Hôpital d'Enfants Brabois, Nancy, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Department of Pediatric Nephrology, Hôpital d'Enfants Brabois, Nancy</wicri:regionArea>
<placeName><region type="region">Grand Est</region>
<region type="old region">Lorraine (région)</region>
<settlement type="city">Nancy</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Auquier, Pascal" sort="Auquier, Pascal" uniqKey="Auquier P" first="Pascal" last="Auquier">Pascal Auquier</name>
<affiliation wicri:level="3"><nlm:affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
</affiliation>
</author>
<author><name sortKey="Berbis, Julie" sort="Berbis, Julie" uniqKey="Berbis J" first="Julie" last="Berbis">Julie Berbis</name>
<affiliation wicri:level="3"><nlm:affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</nlm:affiliation>
<country xml:lang="fr">France</country>
<wicri:regionArea>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille</wicri:regionArea>
<placeName><region type="region">Provence-Alpes-Côte d'Azur</region>
<region type="old region">Provence-Alpes-Côte d'Azur</region>
<settlement type="city">Marseille</settlement>
</placeName>
</affiliation>
</author>
</analytic>
<series><title level="j">BMC nephrology</title>
<idno type="eISSN">1471-2369</idno>
<imprint><date when="2019" type="published">2019</date>
</imprint>
</series>
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<profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adaptation, Psychological (physiology)</term>
<term>Adolescent (MeSH)</term>
<term>Adult (MeSH)</term>
<term>Child (MeSH)</term>
<term>Female (MeSH)</term>
<term>France (epidemiology)</term>
<term>Humans (MeSH)</term>
<term>Leisure Activities (psychology)</term>
<term>Male (MeSH)</term>
<term>Middle Aged (MeSH)</term>
<term>Parents (psychology)</term>
<term>Prospective Studies (MeSH)</term>
<term>Quality of Life (psychology)</term>
<term>Renal Dialysis (psychology)</term>
<term>Renal Dialysis (trends)</term>
<term>Renal Insufficiency, Chronic (epidemiology)</term>
<term>Renal Insufficiency, Chronic (psychology)</term>
<term>Renal Insufficiency, Chronic (therapy)</term>
<term>Self Report (MeSH)</term>
</keywords>
<keywords scheme="KwdFr" xml:lang="fr"><term>Activités de loisirs (psychologie)</term>
<term>Adaptation psychologique (physiologie)</term>
<term>Adolescent (MeSH)</term>
<term>Adulte (MeSH)</term>
<term>Adulte d'âge moyen (MeSH)</term>
<term>Autorapport (MeSH)</term>
<term>Dialyse rénale (psychologie)</term>
<term>Dialyse rénale (tendances)</term>
<term>Enfant (MeSH)</term>
<term>Femelle (MeSH)</term>
<term>France (épidémiologie)</term>
<term>Humains (MeSH)</term>
<term>Insuffisance rénale chronique (psychologie)</term>
<term>Insuffisance rénale chronique (thérapie)</term>
<term>Insuffisance rénale chronique (épidémiologie)</term>
<term>Mâle (MeSH)</term>
<term>Parents (psychologie)</term>
<term>Qualité de vie (psychologie)</term>
<term>Études prospectives (MeSH)</term>
</keywords>
<keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>France</term>
</keywords>
<keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Renal Insufficiency, Chronic</term>
</keywords>
<keywords scheme="MESH" qualifier="physiologie" xml:lang="fr"><term>Adaptation psychologique</term>
</keywords>
<keywords scheme="MESH" qualifier="physiology" xml:lang="en"><term>Adaptation, Psychological</term>
</keywords>
<keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Activités de loisirs</term>
<term>Dialyse rénale</term>
<term>Insuffisance rénale chronique</term>
<term>Parents</term>
<term>Qualité de vie</term>
</keywords>
<keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Leisure Activities</term>
<term>Parents</term>
<term>Quality of Life</term>
<term>Renal Dialysis</term>
<term>Renal Insufficiency, Chronic</term>
</keywords>
<keywords scheme="MESH" qualifier="tendances" xml:lang="fr"><term>Dialyse rénale</term>
</keywords>
<keywords scheme="MESH" qualifier="therapy" xml:lang="en"><term>Renal Insufficiency, Chronic</term>
</keywords>
<keywords scheme="MESH" qualifier="thérapie" xml:lang="fr"><term>Insuffisance rénale chronique</term>
</keywords>
<keywords scheme="MESH" qualifier="trends" xml:lang="en"><term>Renal Dialysis</term>
</keywords>
<keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>France</term>
<term>Insuffisance rénale chronique</term>
</keywords>
<keywords scheme="MESH" xml:lang="en"><term>Adolescent</term>
<term>Adult</term>
<term>Child</term>
<term>Female</term>
<term>Humans</term>
<term>Male</term>
<term>Middle Aged</term>
<term>Prospective Studies</term>
<term>Self Report</term>
</keywords>
<keywords scheme="MESH" xml:lang="fr"><term>Adolescent</term>
<term>Adulte</term>
<term>Adulte d'âge moyen</term>
<term>Autorapport</term>
<term>Enfant</term>
<term>Femelle</term>
<term>Humains</term>
<term>Mâle</term>
<term>Études prospectives</term>
</keywords>
<keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>France</term>
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<front><div type="abstract" xml:lang="en"><p><b>BACKGROUND</b>
</p>
<p>To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>METHODS</b>
</p>
<p>All adolescents initiating haemodialysis between September 2013 and July 2015 in French paediatric haemodialysis centres were included. Quality of life data were collected using the "Vécu et Santé Perçue de l'Adolescent et l'Enfant" questionnaire, and coping data were collected using the Kidcope questionnaire. Adolescent's quality of life was compared with age- and sex-matched French control.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>RESULTS</b>
</p>
<p>Thirty-two adolescents were included. Their mean age was 13.9 ± 2.0 years. The quality of life score was lowest in leisure activities and highest in relationships with medical staff. Compared with the French control, index, energy-vitality, relationships with friends, leisure activities and physical well-being scores were significantly lower in haemodialysis population. In multivariate analyses, active coping was positively associated with quality of life and especially with energy-vitality, relationships with parents and teachers, and school performance. In contrast, avoidant and negative coping were negatively associated with energy-vitality, psychological well-being and body image for avoidant coping, and body image and relationships with medical staff for negative coping.</p>
</div>
<div type="abstract" xml:lang="en"><p><b>CONCLUSIONS</b>
</p>
<p>The quality of life of haemodialysis adolescents, and mainly the dimensions of leisure activities, physical well-being, relationships with friends and energy-vitality, were significantly altered compared to that of the French population. The impact of coping strategies on quality of life seems to be important. Given the importance of quality of life and coping strategies in adolescents with chronic disease, health care professionals should integrate these aspects into care management.</p>
</div>
</front>
</TEI>
<pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">31088395</PMID>
<DateCompleted><Year>2020</Year>
<Month>07</Month>
<Day>03</Day>
</DateCompleted>
<DateRevised><Year>2020</Year>
<Month>07</Month>
<Day>03</Day>
</DateRevised>
<Article PubModel="Electronic"><Journal><ISSN IssnType="Electronic">1471-2369</ISSN>
<JournalIssue CitedMedium="Internet"><Volume>20</Volume>
<Issue>1</Issue>
<PubDate><Year>2019</Year>
<Month>05</Month>
<Day>14</Day>
</PubDate>
</JournalIssue>
<Title>BMC nephrology</Title>
<ISOAbbreviation>BMC Nephrol</ISOAbbreviation>
</Journal>
<ArticleTitle>Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.</ArticleTitle>
<Pagination><MedlinePgn>163</MedlinePgn>
</Pagination>
<ELocationID EIdType="doi" ValidYN="Y">10.1186/s12882-019-1365-3</ELocationID>
<Abstract><AbstractText Label="BACKGROUND">To describe the quality of life of adolescents initiating haemodialysis, to determine the factors associated with quality of life, and to assess coping strategies and their impact on quality of life.</AbstractText>
<AbstractText Label="METHODS">All adolescents initiating haemodialysis between September 2013 and July 2015 in French paediatric haemodialysis centres were included. Quality of life data were collected using the "Vécu et Santé Perçue de l'Adolescent et l'Enfant" questionnaire, and coping data were collected using the Kidcope questionnaire. Adolescent's quality of life was compared with age- and sex-matched French control.</AbstractText>
<AbstractText Label="RESULTS">Thirty-two adolescents were included. Their mean age was 13.9 ± 2.0 years. The quality of life score was lowest in leisure activities and highest in relationships with medical staff. Compared with the French control, index, energy-vitality, relationships with friends, leisure activities and physical well-being scores were significantly lower in haemodialysis population. In multivariate analyses, active coping was positively associated with quality of life and especially with energy-vitality, relationships with parents and teachers, and school performance. In contrast, avoidant and negative coping were negatively associated with energy-vitality, psychological well-being and body image for avoidant coping, and body image and relationships with medical staff for negative coping.</AbstractText>
<AbstractText Label="CONCLUSIONS">The quality of life of haemodialysis adolescents, and mainly the dimensions of leisure activities, physical well-being, relationships with friends and energy-vitality, were significantly altered compared to that of the French population. The impact of coping strategies on quality of life seems to be important. Given the importance of quality of life and coping strategies in adolescents with chronic disease, health care professionals should integrate these aspects into care management.</AbstractText>
</Abstract>
<AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Clavé</LastName>
<ForeName>Stéphanie</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Department of Multidisciplinary Pediatrics, Hôpital de la Timone Enfant, Assistance Publique des Hôpitaux de Marseille, Marseille, France. stephanie.clave@ap-hm.fr.</Affiliation>
</AffiliationInfo>
<AffiliationInfo><Affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France. stephanie.clave@ap-hm.fr.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Tsimaratos</LastName>
<ForeName>Michel</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Department of Multidisciplinary Pediatrics, Hôpital de la Timone Enfant, Assistance Publique des Hôpitaux de Marseille, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Boucekine</LastName>
<ForeName>Mohamed</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Ranchin</LastName>
<ForeName>Bruno</ForeName>
<Initials>B</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Hôpital Femme Mere Enfant, Hospices Civils de Lyon, Lyon, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Salomon</LastName>
<ForeName>Rémi</ForeName>
<Initials>R</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Assistance Publique des Hôpitaux de Paris, University Hospital Necker-Enfants Malades, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Dunand</LastName>
<ForeName>Olivier</ForeName>
<Initials>O</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Hôpital Félix Guyon, University Hospital La Réunion, Saint-Denis, La Réunion, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Garnier</LastName>
<ForeName>Arnaud</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Children Hospital Toulouse, Toulouse, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Lahoche</LastName>
<ForeName>Annie</ForeName>
<Initials>A</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Jeanne de Flandre Hospital, University Hospital of Lille, Lille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Fila</LastName>
<ForeName>Marc</ForeName>
<Initials>M</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, hôpital Arnaud-de-Villeneuve, University Hospital of Montpellier, Montpellier, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Roussey</LastName>
<ForeName>Gwenaelle</ForeName>
<Initials>G</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, University Hospital of Nantes, Nantes, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Broux</LastName>
<ForeName>Francoise</ForeName>
<Initials>F</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Pediatric Nephrology and Hemodialysis Unit, University Hospital Charles Nicolle, Rouen, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Harambat</LastName>
<ForeName>Jérome</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics, Hôpital Pellegrin-Enfants, University Hospital of Bordeaux, Bordeaux, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Cloarec</LastName>
<ForeName>Sylvie</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology and Hemodialysis, Clocheville Hospital, University Hospital of Tours, Tours, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Menouer</LastName>
<ForeName>Soraya</ForeName>
<Initials>S</Initials>
<AffiliationInfo><Affiliation>Department of Pediatrics 1, University Hospital of Strasbourg, Hôpital de Hautepierre, Strasbourg, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Deschenes</LastName>
<ForeName>Georges</ForeName>
<Initials>G</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Assistance publique des Hôpitaux de Paris, University Hospital Robert Debré, Paris, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Vrillon</LastName>
<ForeName>Isabelle</ForeName>
<Initials>I</Initials>
<AffiliationInfo><Affiliation>Department of Pediatric Nephrology, Hôpital d'Enfants Brabois, Nancy, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Auquier</LastName>
<ForeName>Pascal</ForeName>
<Initials>P</Initials>
<AffiliationInfo><Affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
<Author ValidYN="Y"><LastName>Berbis</LastName>
<ForeName>Julie</ForeName>
<Initials>J</Initials>
<AffiliationInfo><Affiliation>Aix-Marseille Univ, School of medicine - La Timone Medical Campus, EA 3279: - CEReSS Health Service Research and Quality of Life Center, Marseille, France.</Affiliation>
</AffiliationInfo>
</Author>
</AuthorList>
<Language>eng</Language>
<PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType>
<PublicationType UI="D016448">Multicenter Study</PublicationType>
<PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType>
</PublicationTypeList>
<ArticleDate DateType="Electronic"><Year>2019</Year>
<Month>05</Month>
<Day>14</Day>
</ArticleDate>
</Article>
<MedlineJournalInfo><Country>England</Country>
<MedlineTA>BMC Nephrol</MedlineTA>
<NlmUniqueID>100967793</NlmUniqueID>
<ISSNLinking>1471-2369</ISSNLinking>
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<QualifierName UI="Q000502" MajorTopicYN="N">physiology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000293" MajorTopicYN="N">Adolescent</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D000328" MajorTopicYN="N">Adult</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D002648" MajorTopicYN="N">Child</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D005602" MajorTopicYN="N" Type="Geographic">France</DescriptorName>
<QualifierName UI="Q000453" MajorTopicYN="N">epidemiology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D007899" MajorTopicYN="N">Leisure Activities</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008297" MajorTopicYN="N">Male</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D008875" MajorTopicYN="N">Middle Aged</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D010290" MajorTopicYN="N">Parents</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="N">psychology</QualifierName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011446" MajorTopicYN="N">Prospective Studies</DescriptorName>
</MeshHeading>
<MeshHeading><DescriptorName UI="D011788" MajorTopicYN="N">Quality of Life</DescriptorName>
<QualifierName UI="Q000523" MajorTopicYN="Y">psychology</QualifierName>
</MeshHeading>
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Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.

Quality of life in adolescents with chronic kidney disease who initiate haemodialysis treatment.

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